Schéma : ISKS is a global genetic, biological, epidemiological and clinical resource for researchers to investigate important questions relating to the hereditary characteristics of sarcoma.
WHAT DOES PARTICIPATION IN ISKS INVOLVE?
- Completing a questionnaire
- A research assistant will ask you questions about your occupation, health, lifestyle, family medical history and your attitudes towards genetics and genetic research. This will take about 30 minutes. This may occur face to face or over the telephone. If necessary an interpreter can be arranged at any time.
- Providing a blood sample
- The research assistant will arrange to have the sample taken and they will give you written instructions as to how to go about this at your local pathology service or GP, at no cost to yourself. The blood will be stored in a central laboratory where genetic material (DNA and RNA) will be extracted and sometimes long living cell lines will be established.
- Allowing ISKS to obtain a small part of any cancer tissue that has been removed in the past, or may be removed in the future.
- This tissue is in excess of anything needed by the pathologist.
- Allowing medical information about yourself and deceased relatives to be collected from cancer registries and similar health organizations.
- Agreeing to identify relevant family members/friends and asking them if they want to be approached by ISKS to participate in the study.
- None of your personal details will be revealed to other family members.
- Agreeing to your specimens (blood and tissue) and information being used for cancer-related research purposes.
Phase : NA
Stade : NA